The Boy Whose Skin Fell Off
8.7
A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.
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Cast
5 people
Patrick Collerton Director · Nick Fenton Editor Sue Giovanni Editor
Budget $150K · First release March 25, 2004 · Produced in United Kingdom
Box office
Budget
$150,000
Production
Channel 4 Television
Production
Yipp Films Ltd
Production
United Kingdom
Produced in
Languages
Original language
English
Release dates
United Kingdom · March 25, 2004
TV · Channel 4
No release date listed for United States.
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Some details come from TheTVDB.